Jockey Jan

About Shindig for 8 Charities

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Read about the Jockey Jan Memorial Fund

 on this web site

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

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Paediatric Gastroenterology Endowment Fund

The Paediatric Gastroenterology Team at Ninewells Hospital care for children with disorders of the digestive system who live in the Tayside area.  Some of these children have significant healthcare needs affecting their daily lives such as Crohn’s Disease, Ulcerative Colitis, Liver Disease and also children with nutritional needs.  For many of the children and young people their condition will continue into adulthood.

The Paediatric Gastroenterology Team care for the children as in-patients and out-patients in the Tayside Children’s Hospital at Ninwells Hospital and also in the out-patient department at Perth Royal Infirmary.  Many of the the children and young people undergo months and years of treatments and tests as part of their care.

The aim of our endowment fund is to improve the quality of life for the children when they are attending the hospital by the purchase of up-to-date computer games, DVD’s, toys and other supplies to occupy them during their hospital visits.

The fund is administered by the staff who care for the children and young people.

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Visit www.cftrust.org.uk to find out about Cystic Fibrosis.
What is Cystic Fibrosis?
Cystic Fibrosis (CF) is one of the UK's most common life-threatening inherited diseases.
Cystic Fibrosis affects over 9,000 people in the UK.
Over two million people in the UK carry the faulty gene that causes Cystic Fibrosis - around 1 in 25 of the

population.
If two carriers have a child, the baby has a 1 in 4 chance of having Cystic Fibrosis.
Cystic Fibrosis affects the internal organs, especially the lungs and digestive system, by clogging them with

thick sticky mucus. This makes it hard to breathe and digest food.
Each week, five babies are born with Cystic Fibrosis.
Each week, two young lives are lost to Cystic Fibrosis.
Only half of those living with Cystic Fibrosis are likely to live past their late 30s.
How is Cystic Fibrosis diagnosed?
Cystic Fibrosis is increasingly being diagnosed through screening, but some babies and older children (and even

adults) are diagnosed following unexplained illness.

There are three types of screening for Cystic Fibrosis: newborn screening, carrier testing and antenatal testing.
Newborn Testing
Following a campaign by the Cystic Fibrosis Trust, the National Screening Committee recommended that all

babies should be screened for Cystic Fibrosis. This has now been implemented across the whole of the UK.
The test is a heel-prick to sample blood as part of the normal Guthrie test carried out on all children. The

sooner CF is diagnosed, the sooner appropriate treatment can begin.

For more information please see the UK Newborn Screening Programme Centre.

Carrier Testing
A simple mouthwash test can be taken to tell if you are a carrier. This is important if a relative has CF or is a

known carrier. It is very important to have the test if your partner is a known carrier.

Antenatal Testing
This test is used early in pregnancy to tell whether a baby has Cystic Fibrosis. It is usually offered to mothers

who are recognised as being at a high risk of having a child with Cystic Fibrosis.

Other tests
Other tests for Cystic Fibrosis are the sweat test (people with CF have more salt in their sweat, which can be

detected) or a genetic test, which is a swab taken by gently rubbing the inside of the cheek to check for the

faulty CF gene.
If your partner is a carrier and you want to be tested, the genetic interest group has a useful list of services.
If you are thinking about having a baby and want more information on screening, download our Genetics Booklet

from the web site.

Symptoms of Cystic Fibrosis
Cystic Fibrosis causes the body to produce thick secretions that particularly affect the lungs and digestive

tract.
Symptoms of CF can include a troublesome cough, repeated chest infections, prolonged diarrhoea and poor

weight gain. These symptoms are not unique to Cystic Fibrosis.

Cystic Fibrosis affects a number of organs.
Lungs
It is common for people with CF to encounter some difficulties with their lungs. A combination of physiotherapy

and medication can help control lung infections and prevent lung damage. To avoid the risk of cross-infection, it

is recommended that people with CF do not come into close contact with others with Cystic Fibrosis.

Digestive system
Cystic Fibrosis affects the pancreas, which makes it difficult for people with CF to digest food. This can cause

malnutrition, which can lead to poor growth, physical weakness and delayed puberty. There is medication that

can compensate for the failure of the pancreas.
In older patients, insulin production can become deficient due to increasing pancreatic disease. Some develop CF

related diabetes mellitus and their blood sugar levels are no longer controlled. This rarely happens to children

with Cystic Fibrosis.
Common symptoms of diabetes include thirst, hunger, weight loss and excessive need to urinate, but some people

do not show obvious symptoms of diabetes.

Other Affected Organs
In every ten babies born with CF, one is ill in the first few days of life with a bowel obstruction called

meconium ileus. In these cases, the meconium (a thick black material present in the bowels of all newborn babies)

is so thick that it blocks the bowel instead of passing through. Babies with meconium ileus often need an urgent

operation to relieve and bypass the blockage.

People with CF are prone to developing bone disease (thin, brittle bones) due to the nutritional and other

problems involved with the disease. Adults with CF are at an increased risk of bone disease because of the

adverse effects of steroids taken to control lung disease.

Although Cystic Fibrosis does not cause sexual impotency, it can lead to fertility problems. In most men with CF,

the tubes that carry sperm are blocked, which causes infertility. Because underweight women are more likely to

have irregular menstrual cycles, the nutritional problems associated with CF may affect fertility. Women with

CF do produce healthy, fertile eggs so effective contraception is necessary.

Cystic Fibrosis can cause the blockage of small ducts in the liver. This only happens to approximately 8% of

people who have CF, but it is a serious health risk and may necessitate a liver transplant

Treatment of Cystic Fibrosis
Physiotherapy, Exercise, Medication, Nutrition 

Is there a cure for Cystic Fibrosis?
There is currently no cure for Cystic Fibrosis.

The Cystic Fibrosis Trust funds research to find an effective treatment for CF through gene therapy and we

believe that this is going to be the nearest thing to a cure in the foreseeable future.

Other research is aimed at a pharmacological (or drug based) approach to treating Cystic Fibrosis and we invest

in projects aimed at alleviating the symptoms of Cystic Fibrosis.

Through research, better understanding and treatment of Cystic Fibrosis, life expectancy is increasing. When

the CF Trust was founded in 1964, a child was lucky to live over five years. Only half of those living with Cystic

Fibrosis are likely to live past their late 30s - not good enough, but getting better.
To find out more on Cystic Fibrosis visit their website. 
www.cftrust.org.uk

 

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Lippen Care Strathmore Hospice

Lippen Care
A Ten Year Journey . . .


Lippen Care was formed in 1995 with the aim of providing a hospice facility serving the Forfar, Kirriemuir and Strathmore area within Angus, Tayside.

‘Lippen’ is an old Scots word meaning to ‘trust’ or ‘depend on’ something, and was part of the motto of the former Angus District Council : ‘Lippen on Angus’.

The design of the charity's logo is taken from the design of ancient Pictish symbols found in the Strathmore area, in particular, the churchyard of Aberlemno.

Several years of fundraising began, greatly boosted by an anonymous donation of £250,000 from a Charitable Trust, made on the condition that it be matched by the charity though their own efforts. A total sum of £750,000 was identified as the cost of building and equipping a new hospice unit of four in-patient beds, within a new community hospital which was planned to replace both of the older Forfar Infirmary and Whitehills Hospitals.

The new community hospital, known as Whitehills Health and Community Care Centre, which pioneered a joint project between private, public and voluntary agencies was eventually opened in May 2005 with the new Strathmore Hospice built as an integral wing of the complex. Together with Clova Ward and Prosen Ward the hospice provides first class palliative care for patients and support for families and relatives of patients within their own community.

Strathmore Hospice itself was officially opened on 5th December 2005 by Dr Derek Doyle, long standing friend and mentor to Lippen Care.  This was the culmination of more than 10 years of continuing commitment by many volunteers and the local community and much hard work by the Lippen Care organisation.
Lippen Care continues to support  the hospice through volunteering and fund raising for further service development and training.

Lippen Care and NHS Tayside work in partnership.

About Lippen Care . . .
Lippen Care Aims  . . . .
to promote and enhance the provision of high quality palliative care throughout Angus;
to support the families and carers of patients who are in receipt of palliative care, including the continuation of support following bereavement;
to encourage education and research to improve the quality of palliative care in Angus; and
to promote awareness and understanding within the Community of the importance and value of palliative care.

About Strathmore Hospice . . .
About Us  . . .
Strathmore Hospice is situated adjacent to Clova Ward, part of Whitehills Health and Community Care Centre. Lippen
Care work in partnership to provide a high level of care within the NHS environment.

Strathmore Hospice has 4 single en-suite bedrooms which are for the provision of palliative care where patients have a life-limiting condition.   Clova Ward is a medical ward within the community hospital.   There are 10 single en-suite rooms and 3 twin en-suite rooms in the ward.  The hospice and ward function as an integrated unit thus allowing additional beds in the ward to be utilised for palliative care patients when necessary.  Lippen Care have upgraded a further two bedrooms to palliative care standard.

All staff work in both the hospice and the ward as an integrated team.   The Ward Manager is responsible for the care of all patients.

Hospice Facilities . . .
As a new hospice which is built, equipped and furnished to a high standard our facilities include:
4 en-suite patient bedrooms with sleeping facilities for a family member
Separate bed/sitting room and shower for family
Additional assisted bathroom
Treatment Room
Two quiet rooms
Multi-sensory room
Resources/craft room
Large lounge with dining area and children's corner
Fully equipped kitchen for visitor's use
Comfortable conservatory
Three landscaped gardens
Many families who have used these facilities have commented on how homely and welcoming the hospice is, making their stay a little easier during a difficult time for them.

At the Hospice . . .
At Strathmore Hospice we have a team of nurses, occupational therapists, a physiotherapist, complementary therapists and volunteers.   Medical support is provided by local G.P.'s from each of the four local surgeries.   Specialist medical input is arranged for individual patients to meet their specific needs.   A chaplain provides spiritual support.

The help we provide . . .
In-patient beds for treatment and care of patients
Complementary therapies for patients, relatives and carers.
Bereavement counselling
Telephone advisory service for G.P.'s Community
Nurses, Therapists and Carers.

Home from Home
We aim to provide the atmosphere of a loving caring family home.   Many of the patients, families and visitors comment on how comfortable the surroundings are, the personal comfort and support they have received and the care and love which they have felt during their stay.
Whatever your reason for coming to the Hospice our aim is that it would be home from home.   Patients come to the Hospice, for varying
lengths of stay.   We accept patients with any life limiting and progressive disease.   Since the Hospice opened in April 2005 we have treated people with:

Cancer
Heart Disease
Lung Disease
Kidney Disease
Vascular complications
Patients are admitted to the hospice for symptom control, pain control and end life care.

Complementary Therapies . . .
The hospice offers a range of complementary therapies including Aromatherapy, Massage, Reiki, Relaxation and Beauty Therapy.  All hope to improve the patient's quality of life and self esteem.  These services are provided without cost to patients, carers and staff.

Lippen Care:
promoting high quality palliative care in Angus.
Scottish registered charity.  Charity Number  SC 023376
For further information
www.strathmorehospice.org.uk

 

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Diabetes UK Scotland

Our mission is to improve the lives of people with diabetes and work towards a future without diabetes.  Research is essential to improving the care and treatment, preventing it from developing and ultimately, finding a cure.

Being diagnosed with diabetes can be overwhelming.  One of the most difficult things to come to term with is that diabetes is for life.  Everyone reacts differently when they hear they have diabetes.  Initially you will be shocked, angry, afraid and anxious – some people go through a stage similar to mourning as they are grieving for lost health.

Only research can help in finding a cure for diabetes, so please help by supporting our charity tonight.

Diabetes Uk Scotland
All about diabetes go to
http://www.diabetes.org.uk/Guide-to-diabetes/Introduction-to-diabetes/
These pages give you the basics about diabetes ....what it is, the signs and symptoms, causes and risk factors, the myths and a starting point about how diabetes is treated.  Each section links to further information or if you want to know more than the basics about diabetes use the navigation bar to look through the rest of the your guide to diabetes.

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Ordinary people doing an extraordinary job

The RNLI is the charity that saves lives at sea. We provide a 24-hour lifeboat
search and rescue service around the coasts of the UK and RoI, as well as a
seasonal lifeguard service on many of the busiest beaches in England and Wales.
Lifeboat crews are mostly volunteers, who come from all walks of life, and give
up their time and comfort to carry out rescues and save lives at sea on the
lifeboats.
With over 4,800 lifeboat crew members in the United Kingdom and Republic of
Ireland, of which over 340 are women, lifeboat crews are dedicated and make a
major commitment – which could ultimately include risking their life. They
respond at a moment's notice, no matter where they are or what they are doing
when the pager goes off. Crews are regularly called away from their families,
their beds and their work, 24 hours a day, 365 days a year. Often they’ll leave
a place of comfort to brave the cold and wet in situations that test their
skill, strength and courage. Their lifesaving work is essential, often difficult
and sometimes dangerous.
The commitment of crew members isn't only measured in the time spent involved in
rescues. Increasingly, new equipment and faster boats also means that regular
training programmes account for much of their time. This training includes boat
handling, radio communications, first aid, navigation and radar training.
The RNLI's running costs average around £378,000 (€417,300) a day. For every £1
raised, 84p is spent on operations and 16p is spent on generating income.
Your support is vital - thank you.
To find out more please visit
www.rnli.org.uk .

A charity registered in England and Wales (209603) and Scotland (SC037736).
Charity number CHY 2678 in the Republic of Ireland.

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www.tccl.org.uk

TCCL We are the children's cancer and leukaemia charity who work closely with the oncology staff at Ward 29 in Ninewells Hospital.

TCCL has been serving the Tayside and North East Fife community since 1994. We specialise in supporting families in the local area who have a child under the age of 21, who has been diagnosed with either cancer or leukaemia.
TCCL is a registered Charity (SC023997) with the Office of the Scottish Charity Regulator (OSCR).

Please remember any money raised for TCCL goes direct to support the children and families in Tayside who need it most. We don't pay any wages and our committee is staffed by volunteers who don't take a penny for their hard work.

The diagnosis of Cancer or Leukaemia in a child causes tremendous stress for families who struggle physically, practically, emotionally, and financially with the intensive, intrusive treatment regime and the inevitable disruption it brings to family life.  More often than not, one parent may have to give up work to care for the child in hospital - at a time when they are faced with significant extra expenditure. This is where TCCL aims to help.

We offer financial support in terms of travel grants to get parents to and from treatment if their child is in hospital away from home. We provide grants to families who need support to make family life easier. We've provided everything from a new washing machine, to heating grants to keep children warm during the winter months, to driving lessons for a Mum to help her get to the hospital. Whatever families need, we aim to support them.

Do you just offer financial help?No. We're much more than just a financial support! TCCL organises days out for the children and their families to try and bring back some normality to family life. Every year we host a Teddy Bears Picnic, Halloween Party, Pantomime Visit amongst many activities, where children and their parents can get together and enjoy themselves.

 

How do families find out about TCCL?Two of our committee members are paediatric nurses in Ward 29 at Ninewells Hospital. When a child is diagnosed, support from TCCL is offered to the family. Any applications for support are assessed by the committee and treated with the strictest of confidence.

Do you help children all over Scotland? Our mission is to support local children and keep all funds within the local area; therefore supporting children in Tayside, Angus, North East Fife and Perth are priority.

This charity sounds GREAT! How can I get involved?Easy! Fill in our contact form on the website and a member of the committee will get back to you to discuss your involvement. Or if you'd prefer to offer financial support, you can donate securely online HERE. We also accept cheques, made payable to "Tayside

 

 

Children with Cancer and Leukaemia", sent C/O Ward 29, Ninewells Hospital, Dundee.


For more visit our website at  www.tccl.org.uk

 

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Multiple sclerosis (MS) is the most common disabling neurological disorder affecting young adults and we estimate that around 85,000 people in the UK have MS. MS is the result of damage to myelin – the protective sheath surrounding nerve fibres of the central nervous system. This damage interferes with messages between the brain and other parts of the body.
For some people, MS is characterised by periods of relapse and remission while, for others, it has a progressive pattern. For everyone, it makes life unpredictable.
The MS Society is the UK’s largest charity dedicated to supporting everyone whose life is touched by MSIt provides respite care, a freephone MS Helpline, grants for home adaptations and mobility aids, education and training, specialist MS nurses and a wide range of information.
Local branches cater for people of all ages and interests and are run by people with direct experience of MS.
The MS Society also funds around 80 vital MS research projects in the UK.
Membership is open to people with MS, their families, carers, friends and supporters. You can help the work of the MS Society by:
· becoming a member
· making a donation
· offering you8r time as a volunteer
Contact information
www.mssociety.org.uk
National MS Helpline, Freephone 0808 800 8000

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